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Kathy Marshack News
Journey for Asperger Syndrome Adolescents
Friday, April 24, 2009
The opportunity to travel and explore another culture is a once in a lifetime adventure for many young adults, but it is often off limits for Asperger youth. Thankfully, more and more universities are establishing programs for Asperger teens.
I recently learned that USC University Center For Excellence in Developmental Disabilities at Children's Hospital Los Angeles (CHLA) professionals have put together an adventure for students with Asperger Syndrome (AS). Thirteen days will be spent throughout England and Scotland with professionals from CHLA as well as graduate students who are experienced with students with AS. If you have AS and are between the ages of 16-20, this might be something to look into.
Apparently the goal of this trip is to boost independence and self-sufficiency. With many group activities, it will provide an opportunity to grow in a group environment as well as receive specific mentoring from staff members. There also lies the potential for making life-long friends with those who understand the personal struggles of Asperger Syndrome.
Please contact Beverly Daley, Ph.D. at bdaley@chla.usc.edu or (323) 361-2490 for more information.
Be Involved in April's National Autism Awareness Month
Tuesday, April 21, 2009
Since the 1970's, the Autism Society of America, ASA, has recognized April as the National Autism Awareness Month. With autism on the rise, it's encouraging to see so many people taking the time to educate our society on this subject. Visit ASA's website to see eight ways you can celebrate National Autism Awareness Month.
In honor of National Autism Awareness Month, the University of Washington Autism Center will be offering FREE autism screenings at their clinics in Tacoma and Seattle. The UW has been dedicated to researching, educating, and providing intervention services for children with autism.
Another giant step forward is the new bill that the Washington State Legislature passed to honor individuals with autism. I recommending reading Resolution 8629 to see how the government is determined to provide more support and research for those with autism and their families.
The bottom line is, get involved! The more we know, the more we can help.
Raun Kaufman, a Leader in the Field of Autism, Visits Portland
Saturday, April 11, 2009
I saw that Raun K. Kaufman spoke this week at Oregon Health & Science University. Unfortunately, I was unable to attend the lecture, but I am very impressed by the work of Mr. Kaufman. His stop in Portland was part of a nationwide tour entitled, "Autism: Recovery Is Possible - 2 Hours that Will Change Your Child's Life - The Autism Hope Action Plan."
Raun Kaufman is an autism specialist and CEO of the Autism Treatment Center of America™. When Raun was a child, he was diagnosed with autism and was said to be incurable. With the help and guidance from his parents, Samahria and Barry Neil Kaufman, they developed a one of a kind home program to help Raun. Their work is known as The Son-Rise Program®. Today Raun is a successful and outgoing speaker, author, and teacher.
Raun graduated from Brown University and is now using his life to help others who suffer from autism. He is a valuable member of The Sun Rise Program® and is now covering the country with his inspiring lectures. I am sure we will be hearing much more about Raun Kaufman and the strides he is making to share principles that could greatly impact the autism community.
A New Study Sheds Light on Asperger Syndrome and Hormone Levels
Thursday, April 09, 2009
A fascinating study at Bath University sheds some light on a possible reason why children with Asperger Syndrome (AS) have difficulties adjusting to change in their routine. Studies showed a low level of cortisol, a stress hormone, in children with AS. Normally, there is a surge in cortisol in the early morning hours, but that peak doesn’t occur for those with AS.
Mark Bronson, a psychologist at Bath University, commented, "Although these are early days, we think this difference in stress hormone levels could be really significant in explaining why children with AS are less able to react and cope with unexpected change."
Bath and Bristol Universities plan to continue researching why children with AS find more situations stressful than other children. This will help parents and teachers comprehend what is happening and enable them to avoid adding unnecessary stress to the child.
For more information on this study, I recommend reading an article on Psych Central entitled “New Theories of Autism, Asperger Syndrome”. Also visit my Frequently Asked Questions for more information on Asperger Syndrome.
Autism Asperger Publishing Company (AAPC) founder speaks at Cal U Autism Conference
Friday, April 03, 2009
Brenda Myles, founder of Autism Asperger Publishing Company and award winning author on autism, recently spoke at California University's 2nd Annual P.E.P Rally and Autism Conference. She spoke to an audience of parents, educators, and providers who are dealing with autism. The conference focused on teaching young ones with autism how to overcome the challenges of interpreting communication and understanding others.
Myles spoke about the how autism hinders the ability to read non-verbal language and how those with autism think on a literal level. She also discussed the fact that children with autism need help with the "hidden curriculum" or unwritten rules of society that don’t come naturally.
I appreciated Myles realistic encouragement to this community. She said, "Teaching children with autism spectrum disorders about all of the unwritten rules of society seems an overwhelming task. I like to use the one-a-day method. If education professionals would teach one thing a day to a child with autism, they would cover 180 items a year. Other students will also benefit from the reminders. If parents of children with autism spectrum disorders would teach one thing each day, they would cover 365 items each year. Remember to grab the teachable moments because there are excellent ways to make sure they understand the hidden curriculum. These kids see the world so differently. Academic standards are only one piece of the puzzle. We can't predict where anyone is going to be but we need to teach them ways to be successful in life. The potential is there."
I am pleased that Autism Asperger Publishing Company (AAPC) is publishing my new book Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE?. AAPC provides a variety of books, research, and conferences. Their mission to provide practical solutions to all things related to autism based off the latest research available.
Recommended Books on Asperger Syndrome
Friday, April 03, 2009
With autism on the rise, more and more information is being written for those with autism – including Asperger Syndrome – and their loved ones. I have been doing a lot of reading on autism and have come across some excellent books on the subject.
Here are a few that I highly recommend picking up:
Look Me in the Eye: My Life with Asperger's
- John Elder Robison
Intense, funny, inspiring autobiography of a young man coming of age with Asperger's Syndrome. You can't possibly understand what goes on in the mind of someone with Asperger's Syndrome, if you are neuro-typical. The normal rules do not apply. But Robison describes the inner workings of his mind in a way that shows the incredible structure of an "Aspergian" mind. This is an excellent book for anyone trying to love and understand a loved one with Asperger's Syndrome.
Songs of the Gorilla Nation: My Journey Through Autism
- Dawn Prince-Hughes
A most beautiful and painful look at the struggle the author has lived with as she comes to terms with her Asperger's Syndrome. What is so important about this book is that it is a woman's story. So much is written by parents about raising a child with Asperger's Syndrome. More recently we have learned some about grown men with this developmental disorder. Time Magazine even referred to them as Geeks. But what about women with this disorder? Dawn Prince-Hughes paints a most inspiring story of her rebirth from a disturbed girl and teen into a woman who is a leader in her field, a supportive partner and a loving mother.
Pretending to Be Normal: Living With Asperger's Syndrome - Liane Holliday Willey I love this title! Pretending to be normal is the exact description of the lives of many with Asperger's Syndrome. Pretending to be normal and never really being true to themselves. This book offers a better way to live one's life. Not just for those suffering from Asperger's Syndrome, this book helps their loved ones better understand the complexities of their Asperger's loved ones.
Click here to learn about my new book, Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE?
Here are a few that I highly recommend picking up:
Look Me in the Eye: My Life with Asperger's
Songs of the Gorilla Nation: My Journey Through Autism
Pretending to Be Normal: Living With Asperger's Syndrome - Liane Holliday Willey I love this title! Pretending to be normal is the exact description of the lives of many with Asperger's Syndrome. Pretending to be normal and never really being true to themselves. This book offers a better way to live one's life. Not just for those suffering from Asperger's Syndrome, this book helps their loved ones better understand the complexities of their Asperger's loved ones.
Click here to learn about my new book, Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE?
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